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| Issued in April 1999 by | David Cohen, Ph.D. |
Research group on the social aspects of health and prevention and École de service social, Montreal University |
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| Irma Clapperton, M.D., M.Sc., CSPQ |
Direction de la Santé publique Régie régionale de la santé et des services sociaux de Laval |
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| Pauline Gref, M.D., FRCPC | Pédiatrie Val-Les-Arbres, Laval | |
| Yves Tremblay, M.D., CSPQ, FRCPC |
Clinique de développement Petite Enfance, Cité de la Santé de Laval |
The psychiatric label ADD/ADHD (Attention Deficit Disorder/ Attention Deficit and Hyperactivity Disorder) stems from another label, that of "minimal brain dysfunction" which originates in a non-conclusive American study done in the 1960's that was attempting to link some brain anomaly (never found) to some behavioural or learning problems that attracted attention in the cases of a few children.
To the authors' knowledge, this study is the first one attempting to estimate the level of use of psychostimulating drugs in relation with this diagnostic, by elementary school children, (and the first to date) to have been done in Canada.
Its objectives were:
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(1) to describe the perceptions of the various actors involved in the follow up of the cases of children who have been diagnosed with ADD/ADHD,·
(2) to estimate the extent of psychosimulant drugs prescription to elementary school children in the city of Laval.This study provides an historical recap of the development of the concept of "Attention Deficit Disorder/ Attention Deficit and Hyperactivity Disorder", or ADD/ADHD, of its scientific foundations, and of the prevailing opinions regarding its causes in medical circles.
The systematic non-involvement of two groups of scientists whose contribution could have been critical, that is neurophysiologists and doctors in pedagogy, must be noted.
A preliminary study carried out in Québec in 1997 (Doré & Cohen) revealed already that the tendency to diagnose and medicate more and more so-called "hyperactive" children originated from the school system.
The study also reveals that parents and physicians alike were subjected to enormous pressure from the school system to medicate these children.
The current analysis will bring to light the helplessness of the actors to take control of the situation, the actions of each being the outcome of the actions of the other actors, to prevent the constant increase in the tendency to prescribe Ritalin, despite its demonstrated inefficiency regarding any improvement in the state of children, and despite the fact that no data whatsoever has ever permitted associating ADHD to a brain disfunction.
Despite a voiced intention to help these children, this handy means, effective and available to calm "troublesome" children, henceforth socially accepted and guilt free, seems to have become over time, the last resort tool of choice in the school system, to insure that order will be maintained in the classrooms at the elementary level, because children medicated in this manner become passive, that is, "cease being troublesome", and are afterwards apparently systematically left to themselves, without complementary help.
The study reveals that no effective help is given to the overwhelming majority of children medicated in this manner beyond the prescription itself, mainly of Ritalin (methylphenidate, 85-90% of cases), but also of Dexedrin (dextroamphetamin) and Cylert (pemolin), even if it has been demonstrated beyond the shadow of a doubt, that the medication alone induces no improvement whatsoever in the state of children.
It has also been observed that the increase in psychostimulant prescription, mainly Ritalin, is so rapid in North America, including the province of Quebec, that the most recent statistics systematically become obsolete even before they are published in scientific journals
Health professionals are so overwhelmed by the sheer number of requests that the risks of mis-diagnosis has become extreme for all children who attract attention in the school system, because the official diagnostic criteria for ADD/ADHD are strictly behavioral.
A visit of the child to a physician is not even required for the diagnostic to be posed, and this diagnostic can thus be posed mainly on the basis of information obtained from teachers and parents to the effect that the behavioral traits associated "by them" to ADHD are manifested by the child.
More and more children who "disturb the peace" in class on account of too much enthousiasm, or who attract attention because they feel bored in class, are henceforth at risk of being mis-diagnosed ADHD, without them having the opportunity that their case be medically examined by competent professionals, before it is too late for them, and before irretrievable intellectual dammage is caused to them.
The study concludes that once the evaluation processed has been triggered,
the majority of the children manifesting a range of behavioral traits of various
origins WILL eventually be medicated, and it is unfortunately observed that Ritalin
medication is immediately considered as soon as a child is first perceived as
presenting a problem in class, whatever the cause.
Despite the failure of this first study in the 1960's, the idea lived on and
over time, a wide range of behavioral traits were associated to the various
labels that were used, while various drugs were experimented with to potentially
remedy the condition of the children that were diagnosed. The label still in used
today was finally adopted in 1980.
Finally, after 30 years of groping, studies and experimentations, the final text
of the Concensus Conference on ADD/ADHD held from November 16th to 18th of 1998 at
the National Institute of Health in the U.S.A., declared unequivacally that: "There
are no data to indicate that ADD/ADHD is due to a brain malfunction.". Moreover,
there exists no objective testing procedure allowing to single out the children that
are assumed affected by this problem, the official diagnostic criteria of ADD/ADHD
being strictly behavioral.
Despite these conclusions, more than 5 million American children in 1997 (9
million in 1999) and tens of thousands of French-Canadian children are needlessly
treated with Ritalin or other drugs to control behavioral traits for which no
medical cause was ever discovered. And the trend is gaining in popularity.
An important study (James Swanson et al.) was published in 1993 summarizing the
results of the thousands of studies done regarding the effects of Ritalin on children:
It was shown that all children, diagnosed or not, as well all animal on which
testing was done, react in exactly the same manner to the drug.
For all tested subjects, psychostimulants seemed to increase concentration and
effort while minimizing impulsivity and increasing obedience for a short initial
period of 7 to 18 weeks, to subsequently lose all effectiveness.
Medication does not improve complex abilities like reading, or social interaction.
Results in school can be improved but the medication cannot correct any learning
disability. No improvement has been noted for any significant emotional problem.
There exists no evidence of long term improvement for children submited to
psychostimulant prescription regarding an improvement of their academic results or
a decrease of their antisocial behavior.
The possible unwanted side effects of medication are a decrease in appetite,
dificulty in going to sleep, harmful effects on cognition (creativity and spontaneity
diminished) and on self image, stereotyped behavior, restlessness, nervousness,
emotional instability, and occasionally, exacerbate or cause the emergence of
verbal or motor twitches or mannerisms, and psychotic behavior.
The long term effects are unknown. Depression and psychological dependence
symptoms have been noted, as well as a thwarting of the growth curve, head and
belly aches.
Here are the main points determining the diagnostic and prescription of
the medication:
In the very first year of school, teachers identify various problems as possible
symptoms of ADD/ADHD: inattention, disturbance in the classroom, behavioral problems,
failure.
The teachers refer the child for psychological evaluation, and suggest to parents
to have the child evaluated by a physician. In fact, teachers are the initiators
of the whole process of initial refering of children, but their involvement is
afterwards minimal.
Parents tend to resist considering medication and the child is eventually refered
to a specialist for medical evaluation (pediatrician or neurologist) only after the
child has been evaluated by the psychosocial authority in the school.
Physicians are forced by circumstances to diagnose on the basis of incomplete or
unsatisfactory psychological or psychosocial evaluations. They are overloaded with
cases and are sensitive to the pressure exerted on the parents by the school.
The schools' psychosocial personel are critical of the rigor of the medical
evaluation while front line physicians experience difficulties in establishing
a proper diagnostic considering the absence of biological criteria, and the
contradictions between the various evaluations done by the parents, the teachers
and the psychosocial personel. The specialists on their part harshly criticize
the lack of knowledge of the psychosocial school personel.
All of the actors are aware of a lack of communication between the various groups,
and note that resources are minimal after the diagnostic. A lack of support is
observed for all actors and the families. But most critical, there is a lack of
follow up for the children.
"Family physicians and specialists alike are unanimous regarding the pressures
exerted by the school on parents for them to consult a physician. Consequently,
parents understand that they must consult a physician, or else their child will
be removed from the class and suspended from the school." [Page 22 of the Report].
The requirement of the school for parents to have their child be prescribed
psychostimulants is so intense that in some cases parents go so far as to ask their
physician to "reassure" the school personnel on the intellectual abilities of their
child.
The intensity of the pressures exerted by the school on parents is a major
worry for physicians and specialists, as well as the pressure exerted directly on
themselves by the school, those who do not prescribe the medication ending up not
being refered children any more by schools, who would rather provide references
to names of physicians that are more open to medicate. [Page 26 of the report]
Frontline physicians and specialist assert that once medicated, the school witdraws
all support to the child and his family. One of the physicians party to the study
went as far as stating that "a school problem has been medicalized because the school
has abandoned its primordial role towards children."
It is observed that medication should not be the only action taken, but that
it factually is. It is observed that medication is used as a pretext to diminish
services to children, because none of the actors feels capable of taking on the
responsibility of following up medicated children, in the current situation.
The availability of the medication and the insistance of the school that it be
used even without complementary resources force the actors to act against their
convictions. The interviews of the various actors brings to light that each actor
feels helpless, isolated and unable to counter the pressure to prescribe stimulants
that emanates from the other actors or the school.
The final conclusion is so damning that the authors have expressed it in the
form of a question: "Is medication used mainly to restore "order" and "calm" in
the system?".
It can also be wondered if the extremely restrictive budgetary policies applied
for years to all levels of the schooling system by our governments could be an
important factor in this explosion in the number of "declaration" of cases of
hyperactivity, which coincided with the establishment of these policies, because,
point which is not covered by the study, the amounts allocated to schools by the
Ministry to support children "declared" in difficulty is superior to the amount
allocated for children who are not declared in difficulty, and this applies even
if the diagnosed children receive no extra service besides the actual psychostimulant
prescription, for which the school incurs no costs at all.
Class actions are currently considered in the United States against the manufacturers
and the promoters of their prescription of these drugs for a cessation of the excessive
promotion of this type of prescription. Maybe a public inquiry should be set up here
in the province of Québec to determine if pressures are exerted on teachers for "quotas"
of children in difficulty be filled.
It has been established in the 1950's by French neurophysiologist Paul Chauchard that
an inadequate activation of the verbal centers between birth and the age of approximately 7,
resulted in an incomplete development in children of these centers, which causes a
significant thwarting in the development of the ability of verbal
comprehension and expression. (See The Neurolinguistic Foundations of Intelligence)
The consequence is of course an increased level of difficulty for these children
to clearly understand teachers' explanations after they reach school age, inducing a
state of inattention which is an obvious cause of learning problems in school and of the
disturbing behavioral traits that are now associated with ADD/ADHD.
ADD/ADHD, the origins of the concept and its foundations
The Effects of Psychostimulants
The Pressure from the School System to Diagnose and Medicate
Note from the analyst
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. . . . . . . . . . . . . . Copyright © 2000 - André Michaud